The Reformed MS Society started much in the same way this Foundation started with one spouse fighting for the rights and treatments for another.
Mr. Steven Simonyi-Gindele began the Society after his wife, Ruth, who suffers from Multiple Sclerosis, had the treatment for CCSVI. It is theorized that MS may indeed be a vascular disease and that the resulting destruction of myelin comes from iron deposits in the brain (due to lack of blood flow) which triggers the autoimmune response.
CCSVI, or chronic cerebrospinal venous insufficiency, is treated with balloon angioplasty and stenting of the blocked veins.
The Reformed Multiple Sclerosis Society is your best source for information regarding the treatment for CCSVI. They are not beholden to donations from pharmaceutical companies. We will also start to keep our own section on CCSVI and update with information as it becomes available. I spoke with Elizabeth of the Reformed MS Society back in November of last year. They are a wonderful and accessible organization and if you have any questions, they will try and answer them. Their office number is 604-639-4405.
In short, the procedure was a “successful failure,” in that we successfully determined that I do have significant abnormalities in the vascular system associated with my central nervous system (a very important discovery), but those abnormalities unfortunately could not be remedied during the procedure.
And with the pharmaceutical companies regurgitating cancer drug after cancer drug as the “newest therapy” in their MS arsenal–reformulated and slapped with a higher price tag–it’s time for some real research into the disease and not research into how more money can be made from the disease, year-after-year with no end in sight.